Thursday, May 19, 2011

Neverending story...

Tuesday we made the trip to Indy for more appointments. First we saw Ethan's hip doctor. The xrays showed everything looked great. No new bone growth. Doc said his strength and flexibility has greatly improved since his last visit. Due to his lower back deformity he will always be at risk for another hamstring injury so he needs to spend a lot of time trying to lengthen those muscles as much as possible. Other than that the nerve seems healed and he has been cleared. We can cross that one off the list.

Then it was on to the back doctor. Unfortunately that appt. did not go quite as well. We learned that the L4 vertebral fracture had not healed at all in the last six months and apparently won't without a bone graft...which may or may not even work. We want to avoid that at all costs so we all decided to just leave it as it is. Then we learned that L5 now has multiple stress fractures and he has three bulging discs. His spine in that area is starting to bow outward instead of curve inward. Explains all the increased pain. The reason behind all of these injuries boil down to a combination of two things... he has Scheuermann's disease, which is a juvenille degenerative disc disease, and he has a rare deformity of his 5th lumbar vertebrae. It is fused to his sacrum. He has no movement at all on one side of the joint and very limited movement on the other side. This causes a lot of pressure on his lower back and also causes his hamstrings to be short and tight...so the original avulsion fracture of his hamstring and pelvis was related after all.

So, now what to do. There is no quick fix. They were very clear in telling us this is a lifelong issue he will have to deal with. The extreme end of the treatment options would be to go in and fuse L3 L4 and L5 together which would give him very limited movement and end any sports he might want to be involved in pretty much forever. Because of his age we don't want any part of that until it becomes a necessity...which down the road it most likely will. There are other surgical options in between but for now we decided to do the least invasive and most conservative which would be to brace him. He will wear a custom made brace for the next 12 weeks in hopes that some of the new fractures in L5 will heal and the inflammation will calm down. If it works, he will move back into more therapy to focus on core strengthening and hopefully be able to function somewhat normally. If it doesn't work.... honestly I'm not even going there yet. We will just be praying very hard that it works.

He is taking it ok. He just says he is frustrated, and who wouldn't be. Poor kid has had almost 3 years of pain now, had an extremely invasive hip surgery that has left him with severe numbness in and around the 10" incision site, and for the last 6months has been very restricted on what he can and can't do. It's nothing an almost 17 year old should have to be dealing with that's for sure. But like I have said many times, he is an exceptional person and his faith is strong. We will just continue to take it one day at a time.

2 comments:

Anonymous said...

I didn't realize Ethan was still having problems!!! I'm so sorry he/you all have to go thru this! I'll be praying for you guys!!!

Andrea said...

Thanks Ashlye...he needs all he can get. <3